Acute health care utilization is highest in transition age and young adult patients1

Adolescent patients often lack information about transition to adult care2

Young patients often have difficulty navigating the health care system and enter the transition period with limited psychological, practical, emotional, and monetary support from their families3,4

A comprehensive adult care transition plan

A comprehensive transition plan can help patients navigate from adolescent to adult care5

Doctors and Nurses

Doctors and Nurses:

Ensuring patients have the knowledge about their SCD and treatments is key

Other Professionals

Other Professionals:

Social workers, case coordinators, and patient advocacy groups help patients connect to additional support they may need

Parents/Care Givers

Parents/Care Givers:

Caregivers play an important role both during the transition and after, helping young adults transition into adult care



Getting involved with care decisions and taking steps to learn about their treatments is important

While caregivers should maintain an active role, it is important to encourage patients to get more involved in their care as they transition to adult care

Providing a Framework for Transition to Adult Care





Resources and Tools for Doctors and Patients Navigating Transition

Transition to Adult Care Video Resources







References: 1. Brousseau DC, Owens PL, Mosso AL, Panepinto JA, Steiner CA. Acute care utilization and rehospitalization for sickle cell disease. JAMA. 2010;303(13):1288-1294. 2. Adams-Graves P, Bronte-Jordan L. Recent treatment guidelines for managing adult patients with sickle cell disease: challenges in access to care, social issues, and adherence. Expert Rev Hematol. 2016;9(6):541-552. 3. Stollon NB, Paine CW, Lucas MS, et al. Transitioning adolescents and young adults with sickle cell disease from pediatric to adult healthcare: provider perspectives. J Pediatr Hematol Oncol. 2015;37(8):577-583. 4. Minniti CP, Vichinsky E. Lifespan care in SCD: whom to transition, the patient or the health care system? Am. J Hematol. 2017;92(6):487-489. 5. American Academy of Pediatrics, American Academy of Family Physicians, and American College of Physicians, Transitions Clinical Report Authoring Group. Clinical report—supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics. 2011;128(1):182-200. 6. Crosby LE, Modi AC, Lemanek KL, et al. Perceived barriers to clinic appointments for adolescents with sickle cell disease. Pediatr Hematol Oncol. 2009;31(8):571-576. 7. Montalembert M, Guitton C; French Reference Centre for Sickle Cell Disease. Transition from paediatric to adult care for patients with sickle cell disease. Br J Hematology. 2013;164(5):630-635.

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