Educational Resources Resources For Your Patients

Sickle cell disease resources

Educational Resources

Sickle cell disease facts Sickle cell disease facts
Sickle Cell Disease Facts

 

A downloadable fact sheet to learn more about sickle cell disease in the United States.

Sickle cell disease pocket guides Sickle cell disease pocket guides
Sickle Cell Disease Pocket Guides

 

Evidence-based pocket guides on the management of acute and chronic sickle cell disease complications from the American Society of Hematology (ASH).

Sickle cell disease transition readiness assessment Sickle cell disease transition readiness assessment Sickle cell disease transition readiness assessment
Transition Readiness Assessment

 

ASH has a toolkit for hematologists and their patients about transitioning from pediatric to adult care.

The State of Sickle Cell Disease The State of Sickle Cell Disease
The State of Sickle Cell Disease

 

A report from the Sickle Cell Disease Coalition about access to care, training and education, research, and global issues.

Evidence-Based Management of Sickle Cell Disease Evidence-Based Management of Sickle Cell Disease
Evidence-Based Management of Sickle Cell Disease

 

The Expert Panel Report from the National Heart, Lung, and Blood Institute (NHLBI) on the treatment of people with sickle cell disease.

Pathophysiology of sickle cell disease Pathophysiology of sickle cell disease
The Pathophysiology of SCD

 

Watch this video to learn more about SCD and the causes of vaso-occlusion and VOCs.

PCP perspective on managing patients with sickle cell disease video PCP perspective on managing patients with sickle cell disease video
Rethinking Sickle Cell Disease: Hematologist Perspective on This Chronic Vascular Disease

 

Watch this video to learn about the Hematologist perspective when managing their patients with this complicated disease.

ER perspective on managing patients with sickle cell disease video ER perspective on managing patients with sickle cell disease video
Rethinking Sickle Cell Disease: ER Perspective on This Chronic Vascular Disease

 

Watch this video to learn about the ER doctor perspective when managing patients with SCD.

Resources for Your Patients

Generation S is a movement to raise awareness of SCD and give your patients information. A variety of resources and hundreds of patient stories are available on www.JoinGenS.com

Generation S brochure Generation S brochure
Generation S Brochure

 

People with sickle cell disease can visit Generation S to learn more about sickle cell disease and to help shape the conversation about the disease for generations to come.

Sickle cell disease HCP locator Sickle cell disease HCP locator
Sickle Cell Disease HCP Locator

 

A tool to help you identify hematologists who treat patients with SCD based on location. This tool may be helpful when your patients transition from pediatric to adult care.

Generation S story mosaic Generation S story mosaic
Generation S Story Mosaic

 

Generation S members share stories of challenge, hope, and inspiration. Their experiences are leading the movement to raise awareness and show what living with sickle cell disease is like. Check out the Story Mosaic to see just how many people have opened up to Generation S.
Your patient's sickle cell game plan Your patient's sickle cell game plan
Sickle Cell Game Plan for Your Patients

 

The tool will allow patients to visualize and determine how the disease has impacted their quality of life, and provide tips, recommendations. and resources on what they can do to improve it.
Transition brochure for your patients Transition brochure for your patients
Transition Brochure for Your Patients

 

The Generation S Patient Transition Brochure is intended for adolescents (ages 12-18) and their parents to help young people with sickle cell disease transition from pediatric health care to adult health care. This brochure includes important information for patients on how to take charge of their health care, increase their understanding of how they may be impacted by sickle cell disease as they get older, and how to navigate the more complex adult care environment.

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