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Educational Resources
Sickle Cell Disease Facts
A downloadable fact sheet to learn more about sickle cell disease in the United States.
Sickle Cell Disease Pocket Guides
Evidence-based pocket guides on the management of acute and chronic sickle cell disease complications from the American Society of Hematology (ASH).
Transition Readiness Assessment
ASH has a toolkit for hematologists and their patients about transitioning from pediatric to adult care.
The State of Sickle Cell Disease
A report from the Sickle Cell Disease Coalition about access to care, training and education, research, and global issues.
Evidence-Based Management of Sickle Cell Disease
The Expert Panel Report from the National Heart, Lung, and Blood Institute (NHLBI) on the treatment of people with sickle cell disease.
The Pathophysiology of SCD
Watch this video to learn more about SCD and the causes of vaso-occlusion and VOCs.
Rethinking Sickle Cell Disease: Hematologist Perspective on This Chronic Vascular Disease
Watch this video to learn about the Hematologist perspective when managing their patients with this complicated disease.
Rethinking Sickle Cell Disease: ER Perspective on This Chronic Vascular Disease
Watch this video to learn about the ER doctor perspective when managing patients with SCD.
Resources for Your Patients
Generation S is a movement to raise awareness of SCD and give your patients information. A variety of resources and hundreds of patient stories are available on www.JoinGenS.com
Generation S Brochure
People with sickle cell disease can visit Generation S to learn more about sickle cell disease and to help shape the conversation about the disease for generations to come.
Sickle Cell Disease HCP Locator
A tool to help you identify hematologists who treat patients with SCD based on location. This tool may be helpful when your patients transition from pediatric to adult care.
Generation S Story Mosaic
Sickle Cell Game Plan for Your Patients
Transition Brochure for Your Patients
The Generation S Patient Transition Brochure is intended for adolescents (ages 12-18) and their parents to help young people with sickle cell disease transition from pediatric health care to adult health care. This brochure includes important information for patients on how to take charge of their health care, increase their understanding of how they may be impacted by sickle cell disease as they get older, and how to navigate the more complex adult care environment.
