Video Resources

The Roots of Organ Damage in SCD
A Deeper Look at Organ Damage in SCD

Learn more about how organ damage occurs in sickle cell disease (SCD) and how vaso-occlusion and vaso-occlusive crises (VOCs) contribute. This unique whiteboard video explains the underlying complications that may not always be seen in SCD.

What Drives VOCs in SCD
What Drives VOCs in SCD?

SCD goes beyond red blood cells and, early on, progresses to a chronic vascular disease. Watch a unique whiteboard video to learn more about the pathophysiology of SCD.

Pathophysiology of sickle cell disease
The Pathophysiology of SCD

 

Watch this video to learn more about SCD and the causes of vaso-occlusion and VOCs.

Hematologist perspective on managing patients with sickle cell disease video
Rethinking Sickle Cell Disease: Hematologist's Perspective on This Chronic Vascular Disease

 

Watch this video to learn about management of patients with this complicated disease from a hematologist's perspective.

ER perspective on managing patients with sickle cell disease video
Rethinking Sickle Cell Disease: ER Perspective on This Chronic Vascular Disease

 

Watch this video to learn about managing patients with SCD from the perspective of an ER physician.

Educational Resources

Sickle cell disease facts
Sickle Cell Disease Facts

 

A downloadable fact sheet to learn more about sickle cell disease in the United States.

Sickle cell disease pocket guides
Sickle Cell Disease Pocket Guides

 

Pocket guides on the management of acute and chronic sickle cell disease complications from the American Society of Hematology (ASH).

Sickle cell disease transition readiness assessment
Transition Readiness Assessment

 

A toolkit from ASH for hematologists and their patients about transitioning from pediatric to adult care.

The State of Sickle Cell Disease
The State of Sickle Cell Disease

 

A report from the Sickle Cell Disease Coalition about access to care, training and education, research, and global issues.

Evidence-Based Management of Sickle Cell Disease
Evidence-Based Management
of Sickle Cell Disease

 

The Expert Panel Report from the National Heart, Lung, and Blood Institute (NHLBI) on the treatment of people with sickle cell disease.

Resources for Your Patients

Generation S is a movement to raise awareness of SCD and to provide your patients with information. A variety of resources and hundreds of patient stories are available on www.JoinGenS.com

Generation S brochure
Generation S Brochure

 

People with sickle cell disease can visit Generation S to learn more about SCD and to help shape the conversation about the disease for generations to come.

Sickle cell disease HCP locator
Sickle Cell Disease HCP Locator

 

A tool, based on location, to help you find hematologists who treat patients with SCD. This tool may also be helpful when your patients transition from pediatric to adult care.

Generation S story mosaic
Generation S Story Mosaic

 

Generation S members share stories of challenge, hope, and inspiration. Their experiences are leading the movement to raise awareness and show what living with sickle cell disease is like. Check out the Story Mosaic to see just how many people have opened up to Generation S.
Your patient's sickle cell game plan
Sickle Cell Game Plan for Your Patients

 

The tool will allow patients to visualize and determine how the disease has impacted their quality of life. It also provides tips, recommendations, and resources on what they can do to improve it.
Transition brochure for your patients
Transition Brochure for Your Patients

 

The Generation S Patient Transition Brochure is intended for adolescents (aged 12-18) and their parents to help in the transition from pediatric health care to adult health care. This brochure includes important information for patients on how to take charge of their health care, increase their understanding of how they may be impacted by sickle cell disease as they get older, and how to navigate the more complex adult care environment.

Use of website is governed by the Terms of Use and Privacy Policy.

Copyright © 2021 Novartis Pharmaceuticals Corporation. All rights reserved.

1/21 SDC-1236447