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Video Resources
A Deeper Look at Organ Damage in SCD
Learn more about how organ damage occurs in sickle cell disease (SCD) and how vaso-occlusion and vaso-occlusive crises (VOCs) contribute. This unique whiteboard video explains the underlying complications that may not always be seen in SCD.
What Drives VOCs in SCD?
SCD goes beyond red blood cells and, early on, progresses to a chronic vascular disease. Watch a unique whiteboard video to learn more about the pathophysiology of SCD.
The Pathophysiology of SCD
Watch this video to learn more about SCD and the causes of vaso-occlusion and VOCs.
Rethinking Sickle Cell Disease: Hematologist's Perspective on This Chronic Vascular Disease
Watch this video to learn about management of patients with this complicated disease from a hematologist's perspective.
Rethinking Sickle Cell Disease: ER Perspective on This Chronic Vascular Disease
Watch this video to learn about managing patients with SCD from the perspective of an ER physician.
Sickle Cell Disease Facts
A downloadable fact sheet to learn more about sickle cell disease in the United States.
Sickle Cell Disease Pocket Guides
Pocket guides on the management of acute and chronic sickle cell disease complications from the American Society of Hematology (ASH).
Transition Readiness Assessment
A toolkit from ASH for hematologists and their patients about transitioning from pediatric to adult care.
The State of Sickle Cell Disease
A report from the Sickle Cell Disease Coalition about access to care, training and education, research, and global issues.
Evidence-Based Management
of Sickle Cell Disease
The Expert Panel Report from the National Heart, Lung, and Blood Institute (NHLBI) on the treatment of people with sickle cell disease.
Resources for Your Patients
Generation S is a movement to raise awareness of SCD and to provide your patients with information. A variety of resources and hundreds of patient stories are available on www.JoinGenS.com
Generation S Brochure
People with sickle cell disease can visit Generation S to learn more about SCD and to help shape the conversation about the disease for generations to come.
Sickle Cell Disease HCP Locator
A tool, based on location, to help you find hematologists who treat patients with SCD. This tool may also be helpful when your patients transition from pediatric to adult care.
Generation S Story Mosaic
Sickle Cell Game Plan for Your Patients
Transition Brochure for Your Patients
The Generation S Patient Transition Brochure is intended for adolescents (aged 12-18) and their parents to help in the transition from pediatric health care to adult health care. This brochure includes important information for patients on how to take charge of their health care, increase their understanding of how they may be impacted by sickle cell disease as they get older, and how to navigate the more complex adult care environment.
