Resources

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Sickle Cell Disease Resources

Learning More About Sickle Cell Disease

Review these resources for helpful information about managing sickle cell disease (SCD).

Educational Resources

Sickle Cell Disease HCP Locator

A tool to help you identify other sickle cell disease health care professionals (HCP) based on location. This tool may be helpful when your patients transition from pediatric to adult care.

Sickle Cell Disease Pocket Guides

Evidence-based pocket guides on the management of acute and chronic sickle cell disease complications from the American Society of Hematology (ASH).

Transition Readiness Assessment

A toolkit, from ASH, for hematologists and their patients about transitioning from pediatric to adult care.

The State of Sickle Cell Disease

A report, from the Sickle Cell Disease Coalition, about access to care, training and education, research, and global issues.

Evidence-Based Management of Sickle Cell Disease

The Expert Panel Report, from the National Heart, Lung, and Blood Institute (NHLBI), on the treatment of people with sickle cell disease.

Resources For Your Patients

Sickle Cell Disease HCP Locator

A tool to help you identify other sickle cell disease HCPs based on location. This tool may be helpful when your patients transition from pediatric to adult care.

Generation S Brochure

People with sickle cell disease can visit Generation S to learn more about sickle cell disease and to help shape the conversation about the disease for generations to come.

SCDAA

The Sickle Cell Disease Association of America, Inc. (SCDAA) provides leadership nationally through its member organizations to create awareness of the impact of sickle cell disease on the health and well-being of individuals and their families and to create awareness of the requirements for resolution. SCDAA provides effective direction in positioning sickle cell disease and its related problems as a major public health care concern locally, nationally and internationally.

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